20/09/2026
Zenaya’s story
We honestly don’t even know where to begin… 💔
On Monday, our whole world was turned upside down. We found out that Zenaya, has a rare genetic condition called MEF2C.
Nothing can prepare you for hearing that your baby has a condition you’ve never even heard of before. And then being told that your precious little girl may never walk or talk… there are simply no words to describe the pain that brings as a parent. 💔
Zenaya is nearly 12 months old. She has her whole life ahead of her, and as her parents, we had always pictured all the things she would grow up to do. Hearing that some of those things might not happen has completely broken our hearts.
We’ve cried. We’ve asked “why Zenaya?” We’ve worried about her future, and we’ve found ourselves thinking about things that we never thought we would have to think about when she is still such a tiny little girl.
But amongst all the fear, heartbreak and uncertainty, there is one thing we know for certain…
Zenaya is still Zenaya. ❤️
She is our beautiful little girl. Our baby. Our world.
A diagnosis does not change who she is. It doesn’t take away her smile, her personality, her little ways, or all the love and happiness she has brought into our lives. She is so much more than a diagnosis, and she always will be.
We don’t know what the future holds for our girl. We don’t know if she will ever walk. We don’t know if she will ever talk. But we do know that we will be there for every single step of her journey, whatever that journey may look like.
We will fight for her. We will support her. We will encourage her. We will celebrate every single milestone, no matter how big or small. And if she has to take a different path through life, then we will walk that path right beside her. ❤️
